valley fever

NYU Langone Medical Center

This week, the leaders of the National Institutes of Health and the Centers for Disease Control and Prevention are joining leading doctors, researchers, lawmakers, and area residents at a two-day symposium on valley fever in Bakersfield. Experts and patients say the meeting is an opportunity to shine a light on the chronically overlooked and misdiagnosed fungal disease.

Fresno Metro Ministries

This week on Valley Edition we take a look at a few issues impacting the region. Valley Public Radio Reporter Ezra David Romero reports on how the implementation of High Speed Rail will force businesses and residents along its path to relocate. Fresno Bee Reporter Tim Sheehan joins Valley Edition Host Joe Moore for an update on the statewide project.

Henry Barrios / The Bakersfield Californian

The National Institutes of Health and the Centers for Disease Control and Prevention will undertake a clinical trial to learn more about valley fever, agency leaders announced Monday at the start of a two-day symposium on valley fever, hosted by Bakersfield Congressman Kevin McCarthy.

"There are so many things we don't know about valley fever, and the best way to get the answers is to run a clinical trial," said National Institutes of Health director Dr. Francis Collins.

Office of Congressman Kevin McCarthy

Kings County health officer Dr. Michael MacLean uses one word to sum up this week’s valley fever symposium: 'Unprecedented.'

He says it’s a big deal that the leaders of the Centers for Disease Control and the National Institutes of Health are gathering in Bakersfield to focus their attention on an orphan disease that mainly affects the southwestern United States.

Valley Fever Symposium Aims To Spark Search For Vaccine, Awarness

Sep 22, 2013

In his mid-20s, Shane Hoover started planning for his death.

Hoover was diagnosed with valley fever, which is caused by inhaling fungal spores that grow in the soil, in 2010. He took medications for a while that kept it at bay. But he says he could not afford to keep paying for the drugs and, when he stopped, the disease intensified.

“He’d say, ‘I feel my body shutting down. I feel like it’s just a war inside of me that I can’t win,’” his mother, Kathleen Birks, said. “Our conversations became, ‘What do you want me to do with you when you die?’”

Joe Moore / Valley Public Radio

When experts and policymakers from the National Institutes of Health and the Centers for Disease Control and Prevention land in Bakersfield next week, they will be met by many smart, well-meaning individuals hoping for better treatments for valley fever and, ultimately, for a cure.

But they won’t be met by a movement.

Despite its severe toll in California’s Central Valley and other hot spots, valley fever has remained overlooked and underfunded for decades. The absence of a strong patient advocacy movement has contributed to the chronic neglect, experts say.

Rising global temperatures aren’t just an international concern, they’re also an important local issue, especially when it comes to public health. How will climate change affect everything from rates of asthma and valley fever to wildfires and natural disasters?

Congressional Task Force to Aid Valley Fever Fight

Jul 24, 2013
Designed by ReportingonHealth.org graphic artist, Claudia Delgado

Republican Congressman Kevin McCarthy made another move in his crusade against valley fever Wednesday, announcing the new “Congressional Valley Fever Task Force.”

The panel is comprised of 11 Republicans and three Democrats from California, Arizona and Texas. McCarthy said the group grew out of meetings he’s had throughout the year with Rep. David Schweikert, R-Ariz., who will co-chair the task force.

Joe Moore / Valley Public Radio

 

Lawyers representing inmates at Pleasant Valley State Prison in Fresno County and Avenal State Prison in Kings County filed a class action lawsuit in U.S. District Court Tuesday.

The suit is on behalf of black, elderly, and immune-compromised inmates who acquired valley fever since July 2009, while serving time at the two institutions.

The complaint alleges that state and prison officials knew these groups were at high-risk of contracting the serious, potentially fatal form of the disease, but failed to take adequate steps to protect them.

Ezra Romero / Valley Public Radio

On this weeks show, Valley Public Radio's Rebecca Plevin reports that within 90 days all inmates at risk of catching valley fever in Central California prisons must be relocated. Also on Valley Edition, host Joe Moore chats with Fresno Bee Editorial Page Editor Bill McEwen about local and state politics.

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